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User Name Thread Name Subject Posted
Janie Amos is ill (January 2019) (114* d) RE: Amos is ill (January 2019) 13 Mar 19

Have been getting some inquiries re how Amos is doing. Check the caring bridge link at latest update re Amos for latest full update if you live locally as it includes some ways to help. For others, copying and pasting the post I just made, with consent from Amos, to Caring Bridge.

"Journal entry by Janie Endres 12 minutes ago

Hello All,

A bit of an update regarding Amos, provided with his permission. He says to say he would post himself but his 'puter is on the blink. He also won't know, until his computer is fixed, how well he can manage the keyboard as fine motor skills are still a work in progress.

He is at home and is continuing recovery efforts from his severe concussion. To those of us around him, he progresses by leaps and bounds. To Amos, the progress seems frustratingly slow. In-home speech, occupation and speech therapy have been discontinued and there is serious slogging through bureaucracies going on to get outpatient therapies scheduled. His speech is clear, and he has made very significant progress on syntax, inflection, etc. Struggles sometimes to find the right words to use - but this amazingly articulate human being is already more articulate than most of us, even if not back to his prodromal levels.

He is able to sing - pretty well in imho, but not up to his own standards, and working at making some strumable chords on the guitar. Still needs a walker because the internal gyroscope still ain't working right, but there definitely continues to be improvement. Fine motor skills have a ways to go, but again, definitely continuing to improve.

Although fatigue can be an issue, and rest and naps are very important to promote healing after brain injury, he enjoys company and outings. He thinks he is a pain to take somewhere because of the walker, but, believe me folks - that is his imagination. He needs the walker for balance, not because his legs are injured and can't bear full weight. It is a piece of cake to chauffeur him to a local restaurant or coffee shop for an outing, as long as the steps can either accomodate a walker, or there is a sturdy handrail - though, for local folks, I would not recommend lunch at the Saratoga Grill at this point, with their full flight of stairs.

In terms of the cancer, he had a full scan a few weeks ago, and the cancer is 'stable.' No new metastases. Of the already present metastatic lesions, half have shrunk a little and half have grown a little. At present, focus continues to be on recovering from the concussion. Any decisions regarding further experimental treatments or clinical trials are deferred."

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